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Tuesday, September 27, 2011

Meet My Monsters

I guess I'll start this with an introduction to my little family of monsters, and not-so-much monsters.  I affectionately refer to my family as a family of monsters, because I'm sure that anyone watching from the outside, would describe us as exactly that. A family of Monsters; we might as well wear that title like a badge of honor  :)

I am a Monster too, I'm the mother and I'm disabled. I'm high functioning autistic, and physically disabled as well. I'm abulatory, but I have good days and bad. We have a live in caretaker to help me, and to help me raise my children, it adds an interesting dynamic to our family.

My husband, is a not-so-much monster, but I guess we are all a little monster in our own little way. He works outside the home, pays the bills, and comes home to his family of monsters every night. I often wonder why he would want to put up with us and all of our monster-ness, but he says he wouldn't have it any other way   :)

My oldest daughter is almost 7 years old, she's not-so-much monster as well, she is your typical 6 1/2 year old. which of course comes with a bit of monster-ness on it's own.

My second daughter is 4 years old. She's a little bit Monster. but not as much now as when she was a baby. She was born prematurely, and had a rather rough start, and had developmental delays due to prematurity, however with early intervention therapies she has caught up with her peers, and now you wouldn't know she was ever delayed.

My step son is 3 years old. I don't know much about him, as I have never met him, and he doesn't live with us. hopefully that will change soon, and we will get to meet that little person.  I will probably blog about our adventures in that escapade as things go on.  I don't know yet.

My husband and I have one child together(so far lol) and he is currently 9 months old. He is actually the motivation for this blog, and the primary reason for the affectionately used label of "monster".  In some ways, he is your typical 9 month old boy, and in other ways, he is so much....  MONSTER. As with most monsters, they all have their individual challenges, and obstacles, but as a family of monsters, we are determined to overcome and at least try to present a face to the rest of the world that is a little less monster. This monster has been diagnosed as having a Sensory Processing Disorder (also known as SPD), a form of Skeletal Displaysia called Brachydactyly, that causes the small bones of his skeleton to not grow properly, leaving him slightly shorter in stature, with disproportionate hands, fingers, feet and toes. It may cause him to be bowlegged, or have issues with his arms bowing as he gets older, and possibly affect his ribs as well, but as of right now, he is not currently afflicted with that.  He also has some pretty profound developmental delays, and his specialists and therapists are suspicious of Autism Spectrum Disorder. Also known as ASD. He is still too young to be tested or diagnosed, however, he has many of the behavioral markers.

I intend to use code for our family. as I don't yet know how much I can put on the internet without it coming back to bite us in the backside. and although names have been disguised, I do intend to keep the stories true to life.